Socio Ethical Issues In Human Genetics

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Socio Ethical Issues In Human Genetics

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Author : Bartha Maria Knoppers
language : en
Publisher: Cowansville : Éditions Yvon Blais
Release Date : 1998

Socio Ethical Issues In Human Genetics written by Bartha Maria Knoppers and has been published by Cowansville : Éditions Yvon Blais this book supported file pdf, txt, epub, kindle and other format this book has been release on 1998 with Bioethics categories.

Genetic Databases

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Author : Oonagh Corrigan
language : en
Publisher: Routledge
Release Date : 2004-07-31

Genetic Databases written by Oonagh Corrigan and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2004-07-31 with Technology & Engineering categories.

Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical debates in the fields of sociology, anthropology and legal studies, the contributors to this book challenge the prevailing orthodoxy of informed consent and explore the relationship between personal privacy and the public good. They also consider the multiple meanings attached to human tissue and the role of public consultations and commercial involvement in the creation and use of genetic databases. The authors argue that policy and regulatory frameworks produce a representation of participation that is often at odds with the experiences and understandings of those taking part. The findings present a serious challenge for public policy to provide mechanisms to safeguard the welfare of individuals participating in genetic databases.

Human Genetics Ethical And Social Concerns

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Author : Shakeel Abid
language : en
Publisher: GRIN Verlag
Release Date : 2024-06-28

Human Genetics Ethical And Social Concerns written by Shakeel Abid and has been published by GRIN Verlag this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-06-28 with Medical categories.

Scientific Essay from the year 2024 in the subject Medicine - Human Genetics, , language: English, abstract: Challenging ethical issues are raised by new advances and emerging technologies in genetic research. These issues incorporate genetic uniqueness, privacy and discrimination, customized medicine, intellectual property and genetic testing. Investigating these complex issues emphasizes the need to modify ethical guidelines and direct ethics committees about the benefits and ethical apprehension of contemporary genetic research. This review gives an outlook of some major aspects of ethical concerns in human genetics.

Populations And Genetics

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Author : Bartha Maria Knoppers
language : en
Publisher: Martinus Nijhoff Publishers
Release Date : 2003-01-01

Populations And Genetics written by Bartha Maria Knoppers and has been published by Martinus Nijhoff Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003-01-01 with Political Science categories.

Thirty-five papers from the third International DNA Sampling Conference, held in Montreal in September 2002, provide a critical discussion of the socio-ethical and legal issues surrounding DNA sampling in communities and populations around the globe. Contributors address topics related to biobanks and databases; community engagement; confidentialit.

Ethical Challenges In Genomics Research

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Author : Paula Boddington
language : en
Publisher: Springer Science & Business Media
Release Date : 2012-03-12

Ethical Challenges In Genomics Research written by Paula Boddington and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-03-12 with Medical categories.

New developments in science and technology have resulted in shifting ethical challenges in many areas including in genomics research. This book enables those who are involved in genomics research, whether as researcher, participant or policy maker, to understand the ethical issues currently developing in this field and to participate actively in these important debates. A clear account is given of how science and technology are outstripping the capacity of previous ethical regulations to cope with current issues, together with practical illustrations of possible ways forward. Key ethical ideas are presented, drawing on the history of research regulation and on an account of the particular challenges arising in the field of genomics. The book uses a grounded, practical approach to explaining ethical concepts and issues which is geared to enhancing interdisciplinary dialogue. Its broad approach to ethical issues includes relevant considerations from social psychology and there is a particular emphasis on understanding the problems of ethical regulations and practice in the institutional and social context of research. A glossary and numerous text boxes explaining relevant terms and key ideas help to make the work an invaluable resource for both beginners and experts in the field.

The New Genetics From Research Into Health Care

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Author : Irmgard Nippert
language : en
Publisher: Springer Science & Business Media
Release Date : 1999-07-15

The New Genetics From Research Into Health Care written by Irmgard Nippert and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 1999-07-15 with Law categories.

The ultimate goals of human genome research are the treatment, cure and eventual prevention of genetic disorders but treatment and cure lag behind the ability to detect disease or increased suceptibility to disease. Most genetic services today deliver diagnosis and counseling, effective treatment is rare. As more genes are identified there is growing pressure to implement new testing programs or broaden existing programs and otherwise increase both the number of available genetic tests and the amount of genetic information. The main issues concerned among others are: voluntariness of services, freedom of choices, patient autonomy, informed consent, confidentiality of genetic information, privacy, testing of minors, social discrimination and stigmatization.

Human Genome Research

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Author :
language : en
Publisher: Allied Publishers
Release Date : 1999

Human Genome Research written by and has been published by Allied Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 1999 with Medical categories.

Contributed articles presented at an "International Symposium on Human Genome Studies: Emerging Ethical and Socio-Economical Issues" during May 22-25, 1998 in Goa.

Ethics And Human Genetics

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Author : Dorothy C. Wertz
language : en
Publisher: Springer Science & Business Media
Release Date : 2012-12-06

Ethics And Human Genetics written by Dorothy C. Wertz and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-12-06 with Medical categories.

Based in part on a survey of ethical decision-marking among 682 medical geneticists worldwide, this book includes a chapter authored by a geneticistand an ethicist in 19 nations, describing genetic services, counselling, screening, prenatal diagnosis, and major ethical problems and social controversies faced by geneticists. The concluding chapter describes ethical and policy issues that exist worldwide, and offerssome possible resolutions.

Genetics And Ethics In Global Perspective

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Author : Dorothy C. Wertz
language : en
Publisher: Springer Science & Business Media
Release Date : 2004-01-31

Genetics And Ethics In Global Perspective written by Dorothy C. Wertz and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2004-01-31 with Medical categories.

Dorothy Wertz and John Fletcher pioneered the first international study of ethical and social issues in genetics in 18 nations. This book reports and discusses their second and more representative study in 36 nations. The survey focused on actual situations that occur in the practice of medical genetics, presented as case vignettes that can also be used in teaching and policy discussion. Among the issues discussed are privacy, prenatal diagnosis, patient autonomy, directiveness in counseling, sex selection, forensic DNA banking, "genetic discrimination," and "eugenics". This is Dorothy Wertz's final book, as she died in April, 2003. It is a one of a kind cross-cultural study of complex ethical issues in the uses of genetic information. No one else has attempted to look at the international aspects of medical genetics on such a broad scale. The results provide a resource for discussion both within and among nations. Much bioethical and policy discussion now occurs in an information vacuum. The survey showed that what people would do, and their reasons for doing it, differed considerably from what ethicists think they "should" do. Many will be surprised at the results, especially in nations where bioethical discussion is just beginning. Genetics and Ethics in Global Perspective is of interest to medical geneticists, genetic counselors, social scientists and anthropologists who study cross-cultural issues, bioethicists and bioethics centers and health policy makers.

Genetic Imaginations

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Author : Peter Glasner
language : en
Publisher: Routledge
Release Date : 2017-07-05

Genetic Imaginations written by Peter Glasner and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-07-05 with Philosophy categories.

The title of this book derives from C. Wright Mills’ classic The Sociological Imagination (Penguin, 1970), in which he sees the essential project of social science as the use of the imagination to 'grasp history and biography and the relations between the two in society'. This enables the social scientist to 'range from the most impersonal and remote transformations to the most intimate features of the human self'. Another of Mills’ concerns was the relationship between 'the personal troubles of the milieu' and 'the public issues of social structure' and these are most acutely illustrated in human genetics, the most personal of the new technologies. The chapters in this volume address these issues through discussions of choice and informed decision-making, risks and hazards, the economic and political organization of new technology, and the public as well as the scientist’s understanding of science. The methods used range from detailed ethnographies, through deconstruction's of text and action, to surveys and interviews.